Epileptic boy´s mother urges meeting with ministers on…

Clay Curtis
June 20, 2018

"We have been in close contact with Billy's medical team overnight and my decision is based on the advice of senior clinicians who have made clear this is a medical emergency". However, the Home Office ordered that the prescription, which Charlotte Caldwell has described as "life-saving", stop earlier this year.

Ms Caldwell says the oil is keeping the boy's seizures at bay and he had been free of seizures for more than 300 days while using it previously.

He is still banned from taking the remedy at home but was given the oil at Chelsea and Westminster Hospital under a special 20-day licence.

The mother of a severely epileptic boy has called for a meeting with the Home Secretary to discuss legalising a medical cannabis treatment for children with similar conditions.

"I'm delighted to say that I have just spoken with Charlotte to tell her that I have received official confirmation that Billy is going to receive his medication and it is on its way", she said. She said she asked the MP for the medicines to be returned, but was refused.

A number of parents around the United Kingdom are campaigning for cannabis-based drugs to be prescribed for children suffering from seizures, including Karen Gray, from Edinburgh, who has said she is prepared to try anything to help her five-year-old son, Murray, who suffers from "nightmare" seizures.

The mother of a boy who had his medicinal cannabis oil confiscated at Heathrow Airport said the ordeal had been "horrific and cruel". The oil contains a substance called Tetrahydrocannabinol (THC).

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Ms Caldwell said Billy has "stabilised" after receiving his first treatment on Saturday afternoon.

He was hospitalized due to heavy seizures on Friday.

Her son's "little body has been completely broken and his little mind", she said.

"Although Billy has so far only been given one bottle of his medication, I am hopeful that the Home Office will continue to show compassion towards Billy, and allow the return of the remainder of his anti-epilepsy medication", he said. Schedule 1 drugs can be used for research purposes and clinical trials, but only under a Home Office licence.

"This is about getting the medication that these children throughout the United Kingdom desperately need to control their epilepsy".

She said her son was too ill to travel to Canada to get his medication.

His increasingly concerned mother initially took him to St Mary's Hospital in London on Thursday night, where doctors were horrified that he was being deprived of the treatment, their statement added.

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